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Meet
my Son, Spencer
I believe everyone who's ever gotten to
know me, professionally or personally, has heard me speak (glowingly)
of my son, Spencer. In fact he frequently accompanies me on my
business errands. He's a brilliant, creative designer in his own
right, often creating his own books, inventions, automotive designs,
and scale models of things to come. He's been a fixture in the
Fan District of Richmond for most of his life, and is well known in
this area--not because of my efforts, but because of his own unique
charisma.
Spencer has a form of autism called Asperger's
Syndrome that makes him view the world in a different way. He
sees, hears and remembers details that most of us would overlook or
forget. His mind works in a very literal manner, and he's prone
to recite and reenact things he has experienced. He has a refreshing
honesty, juxtaposed against an ongoing urge to invent. Words and
symbols are often interchangeable to him, making his speech and understanding
of speech confusing at times, but delightful once you've learned his
unique linguistic quirks. He struggles with social and linguistic
conventions, but is bursting with innovative ideas and dynamic perspectives.
Autism was once considered a rare condition,
but presently seems to be much more common. There is a spectrum
of disorders, from mild (high-functioning, like Spencer) to severe,
which carry the autism label. People with the milder forms of
autism seem fairly "normal," even charming; whereas those
with more severe forms of autism are noticeably awkward and often have
visual signs of retardation. While I think Spencer is perfect
as he is (I would clone him in a heartbeat), I would love to know more
about the causes and mechanisms of autism. Support for families
with autistic members is crucial. I manage with Spencer rather
well, but his needs require me to be with him more than most parents
can afford. Therefore if you are one of my local clients, you
will most likely meet Spencer at some point.
Should you ever encounter Spencer or another
person with Asperger's Syndrome, please have no anxieties about it.
He is fascinating, helpful, and rarely a distraction from the task at
hand. He is likely to point out something amusing, inform you
of a little-known fact, or ask a truly puzzling question. His
sincere interest in things we might consider mundane, his unique way
of speaking, along with his honest rationale, are refreshing.
He can become confused if you attempt to jest with him the way many
adults do with the children of their peers, as he tends to interpret
phrases literally. He can also be startled by sudden approaches
or someone touching him or his things. However, he can and sometimes
does succeed in expressing or comprehending humor and engaging in handshakes
and hugs. People who have come to know Spencer are actually disappointed
when I show up without him. He's very much a celebrity in many
of Richmond's neighborhoods and business districts. I am more
famous as "Spencer's Dad" than as a local businessman (and
I've worked in and around Richmond since 1989).
Spencer enjoys vehicles, video games,
science, building things (Legos, Tinker Toys, etc.), designing things
(cars, mostly), ancient Egypt, drawing pictures, gardening, playgrounds,
miniature golf, swimming, go-karts, picnics and animals.
More about Autism
People with Asperger's Syndrome ("aspies")
and other forms of High-Functioning Autism (HFA) require a great degree
of support in order to function socially, especially in groups, but
with guidance and encouragement, many are able to lead independent and
meaningful lives. I believe Spencer will have a good degree of
independence as an adult and will offer much to the world. He
is such a joy and inspiration already. Others with autism, however,
remain dependent on intensive, lifelong care and supervision.
It is my wish to offer what help and advice I can to other parents of
autistic children, and to encourage a better public understanding of
the autism spectrum of disorders, as there seem to be an increasing
population of autistic persons.
One of the most crucial things to bear
in mind when dealing with an autistic person, especially children, is
to not feel offended if they are unresponsive, abrupt, or obsessing
about something. They are unaware of our insistence, our emotional
expectations, or the necessity to look at or reply to someone.
Those who associate with autistic people, even parents and caretakers,
must remind themselves to not get upset if they feel ignored, disregarded
or offended. Autistic people hear and interpret words differently
than what we mean to express. They may need us to repeat ourselves
several times. They might not appreciate what we consider urgent,
but it's not because they have contempt for us, for authority, or for
what we consider "right." They are in a different reality
with different values, but are almost always sincere and well-intentioned.
Becoming upset with an autistic person is unlikely to make him or her
pay attention or produce a positive outcome. Shouting at or intimidating
an autistic person will terrify him or her, and cause a period of panic,
severe withdrawal, or obsessive recollections of other frightening situations.
Autistic people are unlikely to associate your emotions with the circumstances
at hand.
People with autism often don't have a
sense of urgency about issues that are not their own. Their minds
associate concepts and emotions differently (there's actually a logic
to it, though it's counterintuitive to our method). They are repelled
by faces, noises, and sometimes physical contact. Most are reluctant
to try new things. Autistic persons are famous for only eating
a small variety of foods (it can be terrifying or traumatic to be presented
with a new food). Their brains interpret sensory input on a scale
neurotypical persons cannot relate to. Certain textures, flavors,
sights and sounds can cause what we would consider pain and shock.
It is a challenge to keep Spencer eating more than 5 or 6 different
foods on an ongoing basis (some self-reliant autistic adults have been
known to eat as few as two foods for years at a time). When overstimulated
with joy or frustration they may rock, spin, flap their hands, or fidget
in some obsessive way (known as "stimming") that comforts
or calms themselves. Stimming is a safe and beneficial practice,
though in some instances a particular mode of stimming might not be
appropriate.
Read my Blog entries dealing with parenting and Aspberger's Syndrome
Parenting
an Autistic Child

Spencer
Gets a Pet

Overstimulation
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